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Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
  1. Shaney L Barratt1,
  2. Michelle Morales1,
  3. Toby Speirs1,
  4. Khaled Al Jboor1,
  5. Heather Lamb1,
  6. Sarah Mulholland1,
  7. Adrienne Edwards1,
  8. Rachel Gunary2,
  9. Patricia Meek2,
  10. Nikki Jordan3,
  11. Charles Sharp4,
  12. Clare Kendall3 and
  13. Huzaifa I Adamali1
  1. 1Bristol Interstitial Lung Disease Service, North Bristol NHS Trust, Bristol, UK
  2. 2Department of Psychology, North Bristol NHS Trust, Bristol, UK
  3. 3Department of Palliative Care Medicine, North Bristol NHS Trust, Bristol, UK
  4. 4Respiratory Medicine, Gloucestershire Hospitals NHS Foundation Trust, Cheltenham, UK
  1. Correspondence to Dr Shaney L Barratt; shaney.barratt{at}nbt.nhs.uk

Abstract

Introduction Patients with progressive idiopathic fibrotic interstitial lung disease (ILD), such as those with idiopathic pulmonary fibrosis (IPF), can have an aggressive disease course, with a median survival of only 3–5 years from diagnosis. The palliative care needs of these patients are often unmet. There are calls for new models of care, whereby the patient’s usual respiratory clinician remains central to the integration of palliative care principles and practices into their patient’s management, but the optimal model of service delivery has yet to be determined.

Methods We developed a novel, collaborative, multidisciplinary team (MDT) meeting between our palliative care, psychology and ILD teams with the principal aim of integrating specialist care to ensure the needs of persons with ILD, and their caregivers were identified and met by referral to the appropriate service. The objective of this study was to assess the effectiveness of this novel MDT meeting on the assessment of a patient’s palliative care needs.

Results Significant increases in advance care planning discussions were observed, in conjunction with increased referrals to community courses and teams, following introduction of this novel MDT.

Conclusions Our results suggest that our collaborative MDT is an effective platform to address patients’ unmet palliative care needs. Further work is required to explore the effect of our model on achieving the preferred place of death and reductions in unplanned hospital admissions.

  • palliative care
  • interstitial fibrosis

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0

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Footnotes

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient consent Not required.

  • Ethics approval The study was approved as a service evaluation project by the North Bristol NHS Trust prior to commencement.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement No additional data are available.

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