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Paediatric lung disease
Genomic testing for children with interstitial and diffuse lung disease (chILD): parent satisfaction, understanding and health-related quality of life

Authors

  • Lauren Kelada Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital Randwick, Randwick, New South Wales, AustraliaSchool of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Claire Wakefield Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital Randwick, Randwick, New South Wales, AustraliaSchool of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Nada Vidic School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • David S Armstrong Department of Respiratory Medicine, Monash Children's Hospital, Melbourne, Victoria, AustraliaDepartment of Paediatrics, Monash University, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Bruce Bennetts Discipline of Genetic Medicine and Discipline of Child & Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, AustraliaSydney Genome Diagnostics, Western Sydney Genetics Program, The Children’s Hospital at Westmead, Sydney, New South Wales, AustraliaKidGen Collaborative, Australian Genomics Health Alliance, Parkville, Victoria, Australia PubMed articlesGoogle scholar articles
  • Kirsten Boggs Department of Clinical Genetics, Sydney Children’s Hospital Network, Westmead, New South Wales, AustraliaMackenzie's Mission, Australian Genomics Health Alliance, Melbourne, Victoria, AustraliaCentre for Clinical Genetics, Sydney Children's Hospital Randwick, Randwick, New South Wales, Australia PubMed articlesGoogle scholar articles
  • John Christodoulou Discipline of Genetic Medicine and Discipline of Child & Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, AustraliaBrain and Mitochondrial, Murdoch Children's Research Institute, University of Melbourne, Melbourne, Victoria, AustraliaDepartment of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Joanne Harrison Department of Paediatrics, University of Melbourne, Melbourne, Victoria, AustraliaDepartment of Respiratory and Sleep Medicine, The Royal Children's Hospital Melbourne, Melbourne, Victoria, AustraliaDivision of Infection and Immunity, Murdoch Children's Research Institute, University of Melbourne, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Gladys Ho Discipline of Genetic Medicine and Discipline of Child & Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, AustraliaSydney Genome Diagnostics, Western Sydney Genetics Program, The Children’s Hospital at Westmead, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Nitin Kapur Department of Respiratory and Sleep Medicine, Queensland Children's Hospital, South Brisbane, Queensland, AustraliaSchool of Medicine, University of Queensland, Brisbane, Queensland, Australia PubMed articlesGoogle scholar articles
  • Suzanna Lindsey-Temple School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, AustraliaDepartment of Clinical Genetics, Liverpool Hospital, Liverpool, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Tim McDonald Paediatrics, Canberra Hospital, Canberra, Australian Capital Territory, Australia PubMed articlesGoogle scholar articles
  • David Mowat School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, AustraliaCentre for Clinical Genetics, Sydney Children's Hospital Randwick, Randwick, New South Wales, Australia PubMed articlesGoogle scholar articles
  • André Schultz Department of Respiratory and Sleep Medicine, Perth Children's Hospital, Perth, Western Australia, AustraliaFaculty of Medicine, Dentistry and Health Sciences, The University of Western Australia, Perth, Western Australia, AustraliaWal-yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Nedlands, Western Australia, Australia PubMed articlesGoogle scholar articles
  • Hiran Selvadurai Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, New South Wales, AustraliaDiscipline of Paediatrics and Child Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Andrew Tai Respiratory and Sleep Medicine, Women's and Children's Hospital Adelaide, North Adelaide, South Australia, AustraliaRobinson Research Institute, The University of Adelaide, Adelaide, South Australia, Australia PubMed articlesGoogle scholar articles
  • Adam Jaffe School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, AustraliaRespiratory Department, Sydney Children's Hospital Randwick, Randwick, New South Wales, Australia PubMed articlesGoogle scholar articles
  1. Correspondence to Dr Lauren Kelada; l.kelada{at}unsw.edu.au
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Citation

Kelada L, Wakefield C, Vidic N, et al
Genomic testing for children with interstitial and diffuse lung disease (chILD): parent satisfaction, understanding and health-related quality of life
BMJ Open Respiratory Research 2022;9:e001139. doi: 10.1136/bmjresp-2021-001139

Publication history

  • Received November 9, 2021
  • Accepted February 2, 2022
  • First published February 21, 2022.
Online issue publication 
October 18, 2023

  • Supplementary Data

    This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content.

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© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.