Table 2

Summary of standard set of initial conditions for patients with pulmonary sarcoidosis

Timing for collectionMeasureDetailsSource
First contact with hospital
services		AgeDate of birthAdministrative
At time of clinical visitBody mass indexWeight and height neededClinical
At time of clinical visitComorbidity ICD-10+sleep apnoeaDocumented in historyClinical
First contact with hospital
services		EthnicityDocumented in historyAdministrative
First contact with hospital
services		GenderGender at birth
Documented in history		Administrative
At time of clinical visitMultiorgan involvement53 Various clinical manifestations for the probability of various sarcoidosis-related organ involvement. Ranking options are highly probable, at least probable, possible or no consensusClinical
First contact with hospital
services		Opinion stage (first, second, third)

  1. First opinion

  2. Second opinion

  3. Third opinion

Clinical
Stadium X-thorax42 Scadding stage based on chest X-ray

  1. Stage 0: normal

  2. Stage I: lymph nodes in hili or mediastinum

  3. Stage II and III: I plus distortion in lung (II)

  4. Stage IV: fibrosis in lung, significant fibrotic lesions/end-stage disease

Clinician evaluation/administrative
First contact with hospital
services		Smoking history

  1. Never

  2. Ever

  3. Active (moment of diagnosis an active smoker)

Administrative
First contact with hospital
services		Socioeconomic statusPostal codeAdministrative