| ‘The exercise test was too physically challenging for someone with my lung condition’ | “I was fine – it depends what level you’re at” “I think I could do more than I did from the lung point of view – my legs gave out first” “It helps me to know how I feel” “The whole purpose of this exercise is for people who have a weakness in their body system”
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| ‘Based on my experience in this trial, I think cardiopulmonary exercise testing is feasible for lung disease patients’ | “I think there are certain people who wouldn’t be able to manage it, although carers can hold patients back with their views about what the patient can do” “Oh yeah, and I think it’s an interesting thing to watch - to know what’s happening to your heart. Sometimes I’ve been thinking is it my heart or is it my lungs when I’ve been feeling really poorly” “I think it is essential and it should become compulsory”
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| ‘The idea of using exercise testing to develop individualised exercise programmes for patients does not appeal to me’ | “I may not want to adhere to an exercise programme” “It gives me confidence. I’ve leapt at the chance to do the pulmonary rehab here! (The physical therapist) here described it and it sounded exactly what I need to get my confidence back to do stuff - they said it’s OK to get out of breath, whereas you think you can’t because it’s the PF (pulmonary fibrosis). How you exercise safely is a paradox for me. It’s feeling that you’re not allowed to with PF” “Apart from playing bowls and gardening; I’m not likely to start playing football again!” “I know it’s good for you, but you have to motivate yourself to do it” “It could provide an immediate answer without the punishment of going through medicines”
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