Table 1

Characteristics of participants

Children with cystic fibrosis
PseudonymsGenderAge group (years)Time on elexacaftor-tezacaftor-ivacaftor (months)Latest lung function result (FEV1 %)
RoseFemale16–181691
ElisaFemale16–1815104
AnnaFemale12–15692
MaggieFemale16–1815103
ArthurMale12–1517103
PippaFemale16–1818102
DavidMale12–151898
SonnyMale12–1518110
RubyFemale12–151188
ElizabethFemale12–1516106
Parents/carers
PseudonymsGenderAge group of child (years)
AmyFemale16–18
MarthaFemale12–15
OliviaFemale12–15
HelenFemale12–15
RobMale12–15
PeterMale12–15
JohnMale12–15
Healthcare professionals
PseudonymsRoleLength of experience in cystic fibrosis care (years)
SarahPhysiotherapist>20
LauraNurse specialist10–15
JoanRespiratory physiologist10–15
KatePhysiotherapist1–4
JadeConsultant10–15
LindaDietician1–4
EmmaNurse specialist>20
MaryPhysiotherapist10–15
JuliePhysiotherapist1–4
SuziPhysiotherapist5–9
  • FEV1 %, forced expiratory volume in 1 s percentage predicted.