Children with cystic fibrosis | ||||
Pseudonyms | Gender | Age group (years) | Time on elexacaftor-tezacaftor-ivacaftor (months) | Latest lung function result (FEV1 %) |
Rose | Female | 16–18 | 16 | 91 |
Elisa | Female | 16–18 | 15 | 104 |
Anna | Female | 12–15 | 6 | 92 |
Maggie | Female | 16–18 | 15 | 103 |
Arthur | Male | 12–15 | 17 | 103 |
Pippa | Female | 16–18 | 18 | 102 |
David | Male | 12–15 | 18 | 98 |
Sonny | Male | 12–15 | 18 | 110 |
Ruby | Female | 12–15 | 11 | 88 |
Elizabeth | Female | 12–15 | 16 | 106 |
Parents/carers | ||||
Pseudonyms | Gender | Age group of child (years) | ||
Amy | Female | 16–18 | ||
Martha | Female | 12–15 | ||
Olivia | Female | 12–15 | ||
Helen | Female | 12–15 | ||
Rob | Male | 12–15 | ||
Peter | Male | 12–15 | ||
John | Male | 12–15 | ||
Healthcare professionals | ||||
Pseudonyms | Role | Length of experience in cystic fibrosis care (years) | ||
Sarah | Physiotherapist | >20 | ||
Laura | Nurse specialist | 10–15 | ||
Joan | Respiratory physiologist | 10–15 | ||
Kate | Physiotherapist | 1–4 | ||
Jade | Consultant | 10–15 | ||
Linda | Dietician | 1–4 | ||
Emma | Nurse specialist | >20 | ||
Mary | Physiotherapist | 10–15 | ||
Julie | Physiotherapist | 1–4 | ||
Suzi | Physiotherapist | 5–9 |
FEV1 %, forced expiratory volume in 1 s percentage predicted.