Table 1

Characteristics of interviewees

Service-users (n=10)*Baseline characteristics
Female sex6 (60%)
Age72 (8)
Ethnicity
 White British5 (50%)
 Indian3 (30%)
 Black Caribbean1 (10%)
 Other White background1 (10%)
ILD disease category
 IPF5 (50%)
 CT-ILD2 (20%)
 Sarcoidosis2 (20%)
 Antisynthetase syndrome associated ILD1 (10%)
Forced vital capacity (L)†2.18 (0.85)
Forced vital capacity (% predicted)†68.0 (25.5)
Transfer of the lung for carbon monoxide (mmol/min/kPa)‡3.58 (1.35)
Transfer of the lung for carbon monoxide (%predicted)‡55.5 (23.5)
Prescribed long-term oxygen therapy2 (20%)
Prescribed ambulatory oxygen therapy5 (50%)
MRC
 ≤34 (40%)
 ≥46 (60%)
Able to use the internet6 (60%)
Previously completed PR9 (90%)
PR programme model experience
 In-person only6 (60%)
 Video-conference PR only2 (20%)
 Telephone support PR only1 (10%)
 Videoconference and telephone support PR1 (10%)
Healthcare professionals (n=7)
Female sex4 (60%)
Profession
 Physiotherapist6 (86%)
 Physiotherapy assistant1 (14%)
PR service
 Harefield PR unit4 (60%)
 London PR network3 (40%)
  • Data are reported as number (percentage) or mean (SD).

  • *Four spouses were also interviewed alongside their partner but demographic data were not collected.

  • †Forced vital capacity data were only available for eight participants.

  • ‡Transfer factor of the lung for carbon monoxide data were only available for five participants.

  • ILD, interstitial lung disease; IPF, idiopathic pulmonary fibrosis; MRC, Medical Research Council Dyspnoea Scale; PR, pulmonary rehabilitation.